The Center for Disease Analysis Foundation provides the following tools free charge. All of these tools can be modified to fit your organization’s needs. The language can be changed by using Google translate to translate the file into your local language.
We only ask that if you make substantial improvements and feel comfortable sharing your work, you will provide us a with a copy of your code to share with others. We also ask that you give us credit when publishing or presenting.
In our programs, we have used REDCap (https://www.project-redcap.org), a free patient registry developed and distributed by Vanderbilt University. It has the proper security built-in to protect patient personal data including encryptions of these fields in the database. The software is available free of charge to non-profits, universities and government organizations (https://projectredcap.org/about/faq/). You don’t need to subscribe to REDCap Cloud as this is a fee based service and free version works well for most organizations (unless you are running very complex clinical trials). Contact redcap@vumc.org to request a license. REDCap can be set up in multiple languages and REDCap mobile app (https://projectredcap.org/software/mobile-app/) allows data entry on mobile devices even when access to the internet is limited or unavailable. Installation procedure can be found online (https://projectredcap.org/software/requirements/). The alternative to REDCap is DHIS-2 provided by University of Oslo (https://dhis2.org). We have not worked with DHIS-2 but it is also free and a viable option for creating a patient registry.
REDCap Registry Helper Snippets
- Simplified Hepatitis B, Hepatitis C and COVID-19 Rapid Test Registry (Russian)
REDCap data dictionary that includes fields for patient registration and rapid test results hepatitis B, C and COVID-19.
- Simplified Hepatitis B Patient Registry (English)
REDCap data dictionary that includes fields for patient registration, lab results and prescription and doctor visits.
- Screening of Pregnant Women Patient Registry (Russian/Uzbek)
REDCap data dictionary for recording test results for pregnant women screening. Includes fields for patient information, height, weight, blood pressure, blood sugar, HIV, HBV, HCV, gonococcal, and toxoplasmosis test results.
- Hepatitis B and C Patient Registry (English)
REDCap data dictionary that includes fields for personal information, patient navigator contact results, care coordinator notes, healthcare visits and treatment options.
- Sophisticated Hepatitis B and C Patient Registry (Russian)
REDCap data dictionary that includes fields for screening, lab tests, follow up visits and prescriptions. The format allows limiting access to nurses, doctors, specific hospitals or providing access to all data for the national program manager.
- Really Sophisticated Hepatitis B and C Patient Registry (Russian)
REDCap data dictionary that includes fields for registration, screening, lab tests, follow up visits, prescriptions and pharmacy product purchase. The format allows limiting access to nurses, doctors, single/
multiple hospitals or providing access to all data for the national program manager.
REDCap How-tos:
- Installation and Software Setup
Step-by-step instructions on how to set up a REDCap install.
- Training
An overview of what REDCap can do, and how to interact with it administratively.
- Change Project Language
Where to go to change the language that REDCap uses.
- Reports
An overview of how to run and manage reports.
- Add New Fields to Reports and Generate Reports Without Personal Data
An overview of how to add or remove fields from reports.
- Add New Users
An overview of how to add new non-admin users.
- Update User Access
An overview of how to change user access for already existing users.
- Move Fields
An overview of how to rearrange fields within a project.
- File Upload Settings
An overview of how to change the “File Upload” settings.
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